9-year-old's family hopes to make a difference with bone marrow drive
CLEVELAND, OH (WOIO) -
She's just 9-years-old and living with Sickle Cell disease. Makenzie Nance is no stranger to the Seidman Cancer Center at University Hospitals.
She's already had two blood transfusions and had acute chest syndrome emissions. But two little pills a day have made all the difference.
Hydroxyuria, which the FDA approved for adults years ago, is now proving more and more to be safe and effective for kids like Makenzie being treated at Rainbow Babies and Children's Hospital.
Her father, Reverend Nathan Nance sees it every day, "Oh my God! In our food bill! Cause she's eating more!" he jokes.
"She's eating like crazy like she's an athlete or something. So we have seen a major difference in her energy level."
Sickle cell disease is predominately found in African Americans.
In one little boy's case, he was cured with a bone marrow transplant from his donor sister.
But the Nance family knows there are far too few African Americans on a national registry at bethmatch.com, so they've already signed up 100 people for a Marrow Donor Drive at their Mount Gillion Baptist Church in Cleveland tomorrow.
"This blood drive isn't just for sickle cell patients it's for the African American community at large."
On Saturday, with her parents, Makenzie Nance could change countless lives in a matter of hours.
Blood Drive for Sickle Cell Disease for Makenzie Nance Mt. Gillion Missionary Baptist Church 7025 Cedar Avenue Cleveland, OH Saturday, January 26 10 a.m. to 3 p.m.
Monday, June 17 2013 9:22 PM EDT2013-06-18 01:22:37 GMT
(CNN) - General Motors is recalling nearly 194,000 vehicles because of a fire danger. GM said water can get into an electronic module in the door, causing it to short circuit and catch on fire. The recallMore >>
GM said water can get into an electronic module in the door, causing it to short circuit and catch on fire.More >>
"Sesame Street" has helped kids deal with divorce, death and even hurricanes. The show is now introducing its first Muppet to have a dad in jail. 1 in 29 children in the U.S. has a parent behind bars. The Sesame Workshop has an online tool kit parents can use to help kids. More >>
Tuesday, June 11 2013 1:36 PM EDT2013-06-11 17:36:50 GMT
The Boys & Girls Clubs' Race for Kids & Wellness Festival presented by Cleveland Clinic is a family-friendly combination of a 5K run, or a 1 mile run/walk, and a celebration of health! The event willMore >>
The Boys & Girls Clubs' Race for Kids & Wellness Festival presented by Cleveland Clinic is a family-friendly combination of a 5K run, or a 1 mile run/walk, and a celebration of healthMore >>
For the 2013-14 rankings, U.S. News surveyed 179 pediatric centers to obtain clinical data in 10 specialties and asked 150 pediatric specialists in each specialty where they would send the sickest children.More >>